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Health Forum    Other - Health

‹(•¿•)›
Please don't Google this question...?
Have you ever heard of Kabuki Syndrome?
My son has it, so I'm not looking for details. I know them all.
I just want to get a sense of how many people actually have heard of it before now.
No's are gladly accepted.
Thanks
Additional Details
www.kabukisyndrome.com
Great website.
Thanks for all the answers and kind words
Show all answers
Post your answer

Fearne
No but after looking it up for myself I am familiar with the appearance of the syndrome.

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Tapestry6
Never, but they seem to have a lot of information on it and support sites.

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Dr. J. Argon M.D.
That's.. no, I've never heard of it.

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tm-ar&k
Rating
I've never heard of it.

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ur bloody guts on my rented tux
Rating
no sir, but im sorry to hear about your son having it

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Neescousin
Rating
I have, but from television.

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scaryfairy18
Rating
heard of it, but no idea what it is

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lazy.victor
No. But if its something bad. I hope your son can get trhough it. HANG TIGHT!

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runescape hakker
well um um well ...............no

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vikzy
yes, i have heard of it.. i hope he lives a happy life.
good luck

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Heidi B
I have never heard of it

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Red Terror.
Rating
actually i have heard of it. one of my sisters friends is a nurse who traveled abroad a few times. its a horrifying sounding diseas that cripples the body and pretty much cripples the mind too.
my sincerest comiorations for your son.

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sunny day due oct 30th
no i've not heard of it either

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Blah.
Sorry, but I don't know anything about it.
I hope he gets better though.. If he can.

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bellavita2829
sorry, no, never heard of it, but as a mother , i hope your son is okay.

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yaboo237
Rating
Nope I haven't ever heard of it, but now I am curious

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SoutherNxGirL
Rating
No, I haven't... Is it something major?

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Please
no

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jackie_jabar
I had never heard of Kabuki Syndrome until you posted this question. I googled it just to see what it was but again I had never heard of this.

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whitney
no, never heard of it

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Sugar
I honestly never have.

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Fonz
Rating
No

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talent4god
Rating
i work in a hospital and never heard of it

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Tropical Chick♥ (Anti-Jonas)
go to this website...

http://en.wikipedia.org/wiki/Kabuki_Syndrome

no, i didn't google it!

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Sean Jean
No Sorry, but I hope ur son is ok...

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nickson faction
No,never heard of it.
Without even knowing anything about this condition,,from one man to another,,I hope your boy is gonna be ok.....

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Billy Ireland79
Rating
I've heard of it. I know that the symptoms are different for many people. Some have heart probs, some dont. Some have larger learning disabilities then others. and of course the pale skin. Beyond that I dont know much more. Oh one thing, I think I remember is that lots almost have a form of OCD where they like everything a particular way.
I hope your son is doing okay w/ it.

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Giza Breck
Rating
I have heard of it but only in passing. My son was being tested at a geneticist and I struck up a conversation with anothe woman who was at the office. Her child was being tested for Kabuki Syndrome because everything else had been ruled out.
I was at the beginning of the process with Cornelia de Lange and sanFilippo being the tests my son was in for. I asked about Kabuki because Cornelia de Lange had to do with small frame, finger tips and facial features (eyebrows) and the women had mentioned those were features of Kabuki.
We chatted but the two Syndromes were completely different. I never saw her again and my son was lucky enough to have all genetic tests come back allright. I have never thought about it until now and have never heard of it again until now.

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Israel's Angel
Rating
i'm a nurse & i've never heard of it....c i didn't cheat ;)

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mudhuni
Rating
Never heard of it, can you give US some details?

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doll baby
Rating
no, never heard of it.
So I'm going to Google it... for my own benefit

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